---
title: "Psychological support is also important in polycystic kidney disease!"
description: "Psychological support is also important in polycystic kidney disease!"
url: https://uha.com.tr/psychological-support-also-important-in-polycystic-kidney-disease
type: article
language: en
last_updated: 2026-10-23
category: saglik
---

## Kaynak ve Yayıncı Bilgisi

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Kaynak: https://uha.com.tr

## ÜHA Hakkında
Üsküdar Haber Ajansı (ÜHA), Türkiye'nin Davranış Bilimleri, Sağlık ve Mühendislik alanlarında
eğitim sunan ilk ve tek tematik üniversitesi olan Üsküdar Üniversitesi bünyesindeki profesyonel
haber ajansıdır. Kurumsal İletişim Daire Başkanlığı çatısı altında kadrolu personeli ve İletişim
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## NPİSTANBUL Hastanesi
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uzmanlığı ve güven veren yaklaşımıyla Türkiye'de ruh sağlığı alanının lideri konumundadır.

ÜHA'nın sağlık haberleri, NPİSTANBUL Hastanesi'nin alanında uzman akademisyen ve
hekimlerinin görüşleri ile desteklenmektedir.

## Editoryal Standartlar
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# Psychological support is also important in polycystic kidney disease!

## Bilgi

| Özellik | Değer |
|---------|-------|
| **Kategori** | saglik |
| **Yayın Tarihi** | 2026-10-23 |
| **Güncelleme** | 2026-10-23 |
| **Kaynak** | [Üsküdar Haber Ajansı](https://uha.com.tr/psychological-support-also-important-in-polycystic-kidney-disease) |

## Özet

Speaking at the nephrology congress held in Antalya, Psychiatrist Prof. Nesrin Dilbaz emphasized that the psychological burden in autosomal dominant polycystic kidney disease should also be evaluated.

## İçerik

Prof. Dilbaz pointed out that uncertainty regarding the progression of the disease, pain, fatigue, and anxiety about genetic transmission can increase the psychological burden, stating, “It is important for the patient to understand the options, to be able to ask questions, and for the agreed-upon plan to be re-evaluated during follow-up.” Prof. Dilbaz stated that genetic counseling and the collaboration of different specialty areas play an important role in supporting patients, adding that digital health tools can also strengthen communication between the patient and the healthcare team. 

Psychiatrist Prof. Nesrin Dilbaz of Üsküdar University NPİSTANBUL Hastanesi, in her presentation at the nephrology congress, addressed the importance of physical treatment being carried out alongside mental and social support in autosomal dominant polycystic kidney disease.

**The psychological burden in polycystic kidney disease should not be ignored! **

Prof. Nesrin Dilbaz stated that autosomal dominant polycystic kidney disease, a hereditary disease characterized by the development of cysts in the kidneys, can also affect a person's daily life and future expectations, saying, “Uncertainty regarding the progression of the disease, pain, fatigue, and the concern of transmitting it to children are parts of the psychological burden carried by patients.”

In her presentation titled ‘Beyond the Cyst: Psychological Burden and Shared Decision-Making’, Prof. Dilbaz emphasized that in addition to measurements monitoring kidney functions, the patient's daily experience should also be taken into account.

![](https://cdn.uha.com.tr/content/images/3-261023103348.jpg)

**The patient's quality of life in polycystic kidney disease should also be monitored!**

Prof. Dilbaz stated that in the follow-up of polycystic kidney disease, indicators such as kidney functions, cyst size, and blood pressure are important, adding, “However, patients can experience fatigue, sleep difficulties, pain, and anxieties affecting their life plans even in the early stages of the disease.”

Prof. Dilbaz pointed out that the physician's priorities and the areas where the patient struggles most may not always coincide, stating the following:

“Asking the patient during examination how they feel, to what extent they can carry out their daily activities, and what issues they are anxious about can help plan care appropriately for the individual. Recognizing anxiety or depressive symptoms and, if necessary, referring for mental health support also constitutes an important part of this approach.”

**Genetic counseling supports informed choices in family planning decisions!**

Prof. Dilbaz indicated that the hereditary nature of the disease can also bring up decisions about starting a family and having children, stating, “Some patients may feel guilty due to the possibility of transmitting the disease to their children.”

Prof. Dilbaz noted that a prior experience of dialysis or kidney transplant in the family can also increase fears about the future, saying, “These feelings must be addressed without judgment, and families must be provided with understandable information. Genetic counseling is among the services that support individuals in making informed decisions in line with their own circumstances and values.”

**Treatment decisions should be made considering the patient's expectations and living conditions!**

Prof. Dilbaz stated that in the 'shared decision-making' approach, while the physician explains the benefits and potential risks of treatment options, the patient should also participate in the decision by sharing their own expectations, anxieties, and living conditions.

Prof. Dilbaz reminded that work arrangements, family responsibilities, the impact of treatment on daily life, and personal priorities are among the topics of this approach, stating, “It is important for the patient to understand the options, to be able to ask questions, and for the agreed-upon plan to be re-evaluated during follow-up. The international KDIGO 2025 guideline also emphasizes the importance of personalized care and shared decision-making in polycystic kidney disease.”

**A support network should be created where the patient can share the burden of the disease!**

Prof. Dilbaz spoke about a care model where different fields, especially nephrology, psychiatry, and psychology, can collaborate according to the patient's needs, stating, “Genetic counseling, pain management, nutritional support, and social services can also contribute to this model.”

Prof. Dilbaz added that informing family members with the patient's consent and their participation in the support process are also considered important, underlining that the goal is to create a support network where the person can share the burden of the disease and ask for help.
Technology should be considered an aid that strengthens communication between the patient and the healthcare team!

![](https://cdn.uha.com.tr/content/images/2-261023103450.jpg)

Prof. Nesrin Dilbaz, also referring to the potential role of digital health tools in patient participation, concluded her remarks as follows:

“Symptom diaries, medication and appointment reminders, and remote communication facilities can support the care process under appropriate conditions. In the use of these tools, the protection of personal health data, the reliability of information, and the patient's preferences should be observed. Technology should be considered an aid that strengthens communication between the patient and the healthcare team.

The anxieties, relationships, and future plans of a person living with polycystic kidney disease should also be a part of the treatment discussion.”

## Akademik Referans

DOI: [https://doi.org/10.32739/uha.id.94326](https://doi.org/10.32739/uha.id.94326)

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*Kaynak: [Üsküdar Haber Ajansı](https://uha.com.tr) — https://uha.com.tr/psychological-support-also-important-in-polycystic-kidney-disease*